PH used to be a death sentence, and many people were diagnosed only at their
autopsy.

Now we have a variety of treatments available, and while there is still no cure, our
lives can continue to be as full and rich as we want them to be.

Here are some photos of our members, travelling, spending time with their families,
and taking advantage of the life that proper diagnosis and treatment has given them.
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Left, Ellen and
husband
celebrate their
niece's Bat
Mitzvah near
Boston.


Right, Heather
visits a glacier
in Alaska
Rhonda, husband and
pooch pose prettily!
On November 7, 2008,
Debbie Castro (left) and
Katie Kroner (right) came
with Ellen Harris to
receive the proclamation
of PH Awareness Month
in Alexandria, from
Alexandria's Mayor William Euille.  A
copy of the lovely proclamation will
soon be attached to this page, and the
paper copy will be  framed and hung in
PHA's headquarters.